Non Profit
LucasStrong Be Unbelievable Project
Cedar Rapids, Iowa
Lucas was the youngest of our four children. He has 3 older sisters and is the only one who was diagnosed with Sanfilippo syndrome. Our journey for answers took 8 years of seeing genetics, and specialists until finally in 2006 at the age of 8 we finally received a diagnosis. Our fundraising efforts began shortly after Lucas' diagnosis in 2006. We have hosted numerous yearly awareness events, As a motivational speaker, narrative writer, and Board Member of the MPS Society, I volunteer and continue to speak on MPS awareness and advocate for children and adults with special needs.
Sunday, October 6, 2024
8:30am – 11:00am ET